Thought of the Day

Society thinks it is perfectly acceptable to dress small dogs in clothing,




carry them around in tummy packs, or purses





and push them in strollers.....



YET



Look at me like I have lost my mind and seriously dove off the deep end when they find out we have 4 kids, and might not be done?!?




Please explain.

It is Hot, It is Hot, It is Very Hot

I live on the Central Coast for a very important reason.

I don't do heat.

I don't mind cold.

But I don't do heat.

And on the central coast most days are a nice 65 degrees give or take a few degrees.


But not today. Today at our house we are ringing in right about 101.

Not ok.

And to make matters worse my dear husband wants to sit around in his man cave instead of accompanying me to the cool pool. Unwilling to wrangle 4 kids at the pool myself after we left church I made the command decision to leave my husband at the hot house with our eldest child and proceed to make the journey down to Santa Maria to go to Mcdonalds.

Yes McDonalds, why Santa Maria you ask?

Well they have a wonderful, indoor play land. Yes air-conditioned!

Now they are happily playing why I check email, read blogs and update my own blog, in the coolness. Life is good.

On a side note, yesterday we did enjoy the heat by playing outside with buckets, hose, and dirt. Also my husband would have gone swimming today, but I am a nice wife!


- Posted using BlogPress from my iPad

Neurologist

I know I have been promising you more blog post...what can I say. I love to blog because I feel like it is a great way to chronicle our little life and someday my kids can look back and read all my lovely post and remember the little day to day things that made us smile. At the same time I love for each of my blogs to have pictures because I think it helps to tell the story and that is where the problem lies. Currently the picture aspect of my blogging has been overwhelming therefore I just can't blog, bad me. By the end of the day I am so done I can't even image going through my pictures and uploading them, I know I am weird. So today I felt like I needed to blog something and decide I would just throw in a couple pictures semi-related to my post.

Moving onward:

AJ - Dear, sweet Aj.



Has all the doctors scratching their heads. His condition is so rare that there is little research done on it and the research that has been done on it is conflicting in the course of treatment. Congenital Horners Syndrome by its self is no big deal. You seriously just have one pupil that is smaller then the other, end of story.

The big issue is what caused it.

The Congenital part means it was present from birth on and could have been caused by birth trauma, or during development. However if it wasn't caused by either of those two issues (less than 2% of congenital cases) then that leads to the scary issues such as: tumors, cancer, or cysts anywhere in the body from the brain to the butt. Which leads the doctors to question how to carry on with AJ for 2 reasons, 1. There was no known birth trauma (forceps, vacuum etc) and 2. It was not picked up on until he was 2wk. Of course that doesn't mean it wasn't present, I mean how much does a 2wk old have his eyes open so it could have been easily missed.

With that the eye doctor ran 2 relatively easy test a urine test and abdominal ultrasound. Both test came back normal. This made everyone happy, to an extent. Our eye doctor still want to chat with one more doctor (a neurologist) to make sure she was proceeding correctly. Well the neurologist though it would be a good idea for her to get a look at him because it is a nerve issue and all the conflicting data.

So today we set the big kids to school, Matteo to Noni's and headed to Templeton to visit her. She of course feel in love with AJ who performed with flying colors. He was giggling and cooing for her and laughing at everything she did to him. She said he looks wonderful and from her perspective he seems totally normal but...

she wants do an MRI to rule out everything. Ok, doesn't sound that bad until she says, "The risk of putting him under are well worth it to rule out the scary list of causes." Oh wait a minute you want to sedate my baby. Oh and there is no where in our area that can do this so we have to be sent to Santa Barbara.

"You really think we should do this?"

"Yes, if it was my child there would be no question, I would have the MRI done."

Well how do you say no to that. OK sounds good, when? The doctor answers, "No rush anytime in the next 2 weeks."

No rush?!? I though she was going to say the next couple months! HAHA I guess a rush means tomorrow in the doctor world!!

So we are going to do an MRI, that everyone believes will find nothing wrong!! I am happy that we are doing it though because then we will know once and for all that he is good and there is nothing scary going on in his little body.

There you have it. On a cuter note when I got back to Noni's to pick up Matteo, we had the opportunity to Skpe with our Auntie Karlee. She was happy to see the baby and Matteo was beyond excited to see her. He was kissing the screen and dancing for her. It was pretty cute. I am trying to convince her to meet me in Santa Barbara when I am down there for AJ MRI! When we were all done we closed up the laptop and Matteo leaned down and whispered "bye bye Karlee" Like she was inside the closed up laptop. It was to cute.

With that one last picture of Auntie Karlee and AJ. (I am sure I will get in trouble by someone for posting this picture!!)